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Home > Healthy People > July 2004 


Advance directives communicate end-of-life wishes, eliminate guesswork for families

St. John’s ethicist Dan Dwyer, PhD, MSW, is on a crusade of sorts.

He’s trying to get the word out to the community about the importance of advance directives, which are documents written before serious illness strikes that state wishes about future health care, or name someone to make decisions for you if you cannot make your own decisions.

Advance directives have legal force only if the patient becomes unable to make health care decisions for himself and can be a living will, durable power of attorney for health care, personal letter with end-of-life wishes stated, a values history or a medical directive. |

“I spend a lot of time talking with families as they are making end-of-life decisions about the care of a loved one in the hospital, such as withholding or withdrawing life-sustaining treatment in the presence of a terminal illness,” Dwyer says. “Many of these ethical decisions I help families with are the result of the patient not having an advance directive to communicate her wishes about end-of-life care in the event she can no longer speak for herself.”

 Dwyer recommends that anyone diagnosed with a chronic illness complete an advance directive.
“Many patients first hear about the advance directive from their primary care physician. Others are aware of the importance of the advance directive because of their own experiences with a loved one who did not state his or her wishes about end-of-life care, and the family had to make those decisions for that person,” Dwyer says. “You can always update and amend the advance directive.”

Advance directives must be notarized and witnessed, and the person completing them must be competent. Once the advance directive is completed, Dwyer suggests keeping a copy at home, at the physician’s office and bringing a copy to the hospital upon admittance.

“What’s good about completing an advance directive sooner rather than later is that it gives the person a chance to have a conversation with his family about his end-of-life wishes, before he’s actually dying. Discussing wishes is very helpful for the relative the person has designated as her surrogate decision-maker, in the event the person cannot speak for herself,” Dwyer says. “It also allows the person to really see whether the relative is actually up to being his surrogate decision-maker, because some people have a very difficult time in that role.”

Faith traditions often play an important role in end-of-life care decisions, Dwyer says, and completing an advance directive before the onset of a terminal illness gives people the opportunity to discuss their end-of-life wishes with their minister or cleric.

Dan Dwyer will offer a series of workshops for those interested in assistance completing advance directives as well as for those who have been designated surrogate decision-makers. Call St. John’s Ethics Program at 417-820-2153 for more information.

Where can I get an advance directive?

Your primary care physician

Your attorney

St. John’s Ethics Program, 417-820-2153

St. John’s Health System’s Web site:
http://www.stjohns.com/healthinfo/advancedirective/
default.aspx


Community Alliance for Compassionate Care at the End of Life’s Web site: http://www.missouriendoflife.org

Missouri Bar Association’s Web site: http://www.mobar.org/pamphlet/livewill.htm

Midwest Bioethics Center’s Web site:
http://www.midbio.org
 
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